Ryman’s Story

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Ryman Ali Little

If you haven’t heard Ryman’s story in short –
Ryman Ali Little was born on April 24th. We were preparing to leave the hospital and take Ryman home on April 26th but our nurse had been concerned about Ryman not being as alert and not wanting to eat. The NICU doctor at Baptist Hospital examined her and discovered that her ammonia level was very high, Ryman was then transferred to Vanderbilt Children’s Hospital on her 3rd day of life.

A problem with Ryman’s UREA Cycle was discovered, this disease is a genetic liver disease in which the liver cannot break down protein and the nitrogen accumulates in the form of ammonia in the blood stream. Ammonia then reaches the brain where it can cause irreversible brain damage, coma and/or death. With further testing at Vanderbilt and as a result of this problem Ryman needed a liver transplant. Ryman remained under the care of the doctors and nurses at Vanderbilt Children’s Hospital until she was transferred to Washington DC, Children’s’ National Medical Center on the 12th day of her life. Ryman was under the care of the Genetics team at Children’s until she received a liver transplant on August 30, 2013 at Georgetown University Hospital from her first donor. There was a clot which caused damage to that liver and she received her second liver transplant on September 18, 2013 from another donor.

We, Jeremy and Brandy Little, are so proud to be Ryman’s parents and know that God has a very special plan for her life.

Thank you so much for your continued love, support and prayers for Ryman’s journey.

 

 

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41 thoughts on “Ryman’s Story

  1. Hey Sweet Brandy & Jeremy,
    Just wanted to share with you how much you and your sweet Ryman are being prayed for. We had a cousin reunion this week-end with about 15 people. When we got word about baby Ryman, we all stopped, circled up, and covered you all three in prayer. One of Steve;s cousins is a minister. His wife suggested that to help find comfort it is wonderful to pray scripture over Ryman every day. She suggested Psalm139 verses 13-16. I have been doing that, and also praying for strength, comfort, and love for you and Jeremy. I wake up praying for you, and I lay down praying for you. I hold you close in my heart and look forward to meeting Ryman.

    With Love & prayers,
    Lori Dean:)

  2. Jeremy and Brandy,

    This is Tila Dunn, Clare’s mom. She told me about Ryman and her challenges. I have pirated in through her facebook and found your site. I have read through from today until you began your posts on your precious precious Ryman. I encourage you to never let your faith waiver. You are so entitled to believe for a healing for your baby. Clare’s Dad (R.B.) and I have joined you in your request to the Father for wisdom and direction for your little girl. We are so touched and emotional about your baby and the love you both have for her. Brandy, I will never forget how touched I was from spending the evening with you and getting to know your depth. You are a wonderful Mom and God made a wise choice in sending Ryman to you. Jeremy, I have so enjoyed getting to know you and your dedication to Brandy and Ryman. You are a warrior father and husband. I appreciate and love your presence. We are so heartbroken for the situation, but so uplifted by your faith and your love of the Lord. We will keep reading and praying. R.B. and Tila Dunn

  3. HI BRANDY, JUST LETTING U KNOW OUR PRAYERS ARE WITH YOUR FAMILY. AND READING SOME OF THE POST HERE INSPIRES ME.I KNOW U BOTH HAVE GOD IN YOUR LIFE,DON’T EVER DOUBT HIM.HE HAS A PLAN AND U BOTH WILL BE EVEN STRONGER FOR IT.YOU HAVE A BEAUTIFUL BABY DAUGHTER.GOD BLESS YOU ALL.

  4. Dear Brandy and Jeremy. Butler Co. is prayerfully behind all of you. We are praying for a safe trip to Washington DC and for the future liver transplant. We know baby Ryman is in God’s hands and he will give her what she needs. We are also praying for strength for you both as well. Parents need strength and encouragement at times. Please know we are surrounding you all with love and prayers!!!

  5. Hey Sweet Little Family,
    So thankful for a good day! What a precious, beautiful, little fighter you have. God is so amazing to put just the right people in your life. Not only are you blessed to have sweet people to stay with, but all of us who love you are blessed to know they are there for you too! As always, we will hold you up, and hold you close. Hope you can feel our prayers, and arms around you!
    Love and prayers,
    Lori Dean:)

  6. Good Morning Sweet Little Family,
    Happy Mothers Day(a day late) I was on the road coming home yesterday from being with my Mother. We prayed for you, and thanked God for your Mothers Day. So glad Jeremy is back safe and sound. Can’t believe how big Ryman is getting. She is so bright eyed and beautiful! I love that her last name is Little, but she is a big time fighter:) So many people are keeping you guys in prayer, which I know you know. I just think it is so amazing that the people are literally from the West coast to the East Coast. Ur daughter is famous! BIG HUG to ya’ll.
    Love and prayer,
    Lori Dean:)

  7. Hey Sweet Little Family,
    Isn’t answered prayer beautiful! Also wanted to share what I read in my morning devotional! Thought it was so perfect after reading today’s entry! “Fear sees the storm, Faith sees God in the storm!” I am praying for you both to continue to have strength to “see God”. BIG HUG!
    Love and Prayer,
    Lori Dean:)

  8. Hey Sweet Little Family,
    I have been out of town for a few days, and sure missed keeping up with you guys. So thankful to hear that it is quiet and steady! Have to share with you! Every time I am on the phone with family, friends, or at work, the first words to me are, “how is Ryman?” So many prayers, and love being sent. Sure hope you can feel them. Look forward to putting my arms around you, but until then feel my BIG HUG!
    Love and prayers,
    Lori Dean:)

  9. Good Morning Sweet Little Family,
    Oh my gosh, she is so beautiful! Such a great mix of her Mommy and Daddy! Isn’t it funny how I pray to lose weight(lol!) and I am praying for Ryman to gain weight! Bethany and Scot went to the show last night, she was glad to see part of the Little’s! I can promise you that you and Jeremy are probably more in tune with your little one than most parents, but I will pray for confidence, and assurance! I continue to pray for strength, and hope you can feel my arms around you!
    Love and prayers,
    Lori Dean:)

  10. Hey Sweet Little Family,
    Well, at least we know where we are going, and what to specifically pray for! We will for sure pray for easy, safe travel! Of course with God as the driver, you guys will be just fine. So thankful for all the wonderful people on your medical team for sure! Know how much we are praying, and holding you close! BIG HUGS!
    Love and prayer,
    Lori Dean:)

  11. Hey sweet Little Family,
    Hope you are getting settled in at home! I know there are so many mixed emotions, but sure pray this is a time of catching up a little! Think of you all, and pray for you every day. Look forward to getting my hands on that little munchkin of yours.
    Love and prayers,
    Lori Dean:)

  12. Hey Sweet Little Family,
    Oh How I love the pictures of your precious girl! I am so thankful for this “normal” peaceful time for ya”ll. I love all the people God has placed in your life! So thankful that I am getting to be a part of your sweet family and watching Ryman grow. Look forward to meeting her, holding her, and giving her some love! Of course seeing ya’ll and giving you love too will be a bonus:). Love you guys so much!
    Love and prayers,
    Lori Dean:)

  13. Hey Sweet Little Family,
    I love, love, love the pictures! She is so beautiful! So thankful all is going well right now. Pray for that sweet little thing, and of course for both of you! Want to come and see you, and get a hold of her, so I will have Bethany work that out with you! BIG HUG!

    Love and prayers,
    Lori Dean:)

  14. Hey Sweet Little Family,
    Wow! She really has grown. It is truly amazing for sure. She is a fighter for sure, but don’t forget how awesome her parents are too! She has touched so many lives, but I don’t think you will ever know the lives you and Jeremiah have touched. I’m sure there are days that are so hard, but overall your faith, your strength has been amazing. It is a journey for all of us who love you guys, and we will be right beside you all the way. BIG HUG! Hope to see you soon.
    Love and prayers,
    Lori Dean:)

  15. Hey Sweet Little Family,
    Wow, she has grown so much! So precious! So thankful that right now is a good time. Thank you so much for sharing your heart with us. Thank you so much for sharing God’s word. You will never know how many lives you are touching. BIG HUG!
    Love and prayers,
    Lori Dean:)

  16. Hey Sweet Little Family,
    So exciting about Jeremy! I know that brought some sunshine and joy for sure. As always we will pray for your sweet girl and of course her Mommy and Daddy too! Know how much you are prayed for and loved each and every day! BIG HUGS!
    Love and prayers,
    Lori Dean:)

  17. Hi there.
    Just wanted to send a quick note to say that I’m praying for you all & your beautiful daughter. I work for a nonprofit – we educate Kentuckians about the importance of organ donation & the crucial need for more registered donors. I am also a donor family member. 🙂 I was recently in Butler County and heard about your incredible daughter (and her awesome parents!). Please know that we are fighting for her every day! We won’t stop until there is no waiting list! My thoughts and prayers are with you all always. -Shelley

  18. I don’t know y’all but saw this link through a friend’s facebook page. You are amazing parents and your love for Ryman is tangible through the words on these pages. I can’t stop looking at Ryman’s photo – she is beautiful. I want you to know I am committed to praying for you all every day (I will also be praying that God either opens the living donor door wide open or brings Ryman a liver before Aug. 7th). I too stand firm in the belief that God has a beautiful and GOOD plan for Ryman’s life…and for yours. Thank you for sharing your story.

  19. Hey Sweet Little Family,
    How I have kept you close in prayer! How I wish I could put my arms around you! I am truly lifting you up and praying for strength and perseverance. You all are so loved and prayed for! Hope you can feel this BIG HUG!
    Love and prayers,
    Lori Dean:)

  20. Hey Sweet Little Family,
    Love, love, love the pictures! Thanks for sharing! She is just so beautiful. So thankful for the people at Brandi’s work. Blessing! Continue to hold you close and lift you up. Feel my arms around you. Can’t wait til I can hug in person:). BIG HUG!
    Love and prayers,
    Lori Dean:)

  21. Hey Sweet Little Family,
    WOW! What a journey. I can not even begin to understand, but I know God is so with you guys. I know that he will make it clear what is to be done. I will pray for peace, and comfort for you Jeremy. You are doing what any of us parents would do for our precious children. Will continue to hold you close and hold you up. Will pray for peace and strength for you Brandi, as you hold your husband up, and your baby close. I so love the pictures. She is so beautiful! She is a blessed little girl to have such wonderful, beautiful, loving parents. Ya’ll are awesome. Feel my arms around you! BIG HUG!
    Love and prayers,
    Lori Dean:)

  22. Hey Sweet Little Family,
    Been there, done that recently. Just when you think you are going down one road, there is a blockage of some kind. Then you have to stop, re-think, re-adjust, but most of all remember God really is in control. You showed your strength and your perseverance and I know I have been blown away by both. So consider yourselves even stronger than you thought. You both are amazing, and have brought an amazing little girl into our world. What a trio you guys are! BIG HUG!
    Love and prayers,
    Lori Dean:)

  23. Hey Sweet Little Family,
    How precious is she! I can’t believe she is already 4months old. What a beautiful little fighter she is:) I pray for ya”ll every day, and hold you close in my heart. Hope you can feel my arms around you. BIG HUG!
    Love and prayers,
    Lori Dean;)

  24. Hey Sweet Little Family,
    I have cried tears of joy, and tears of sorrow, had laughter and thanked God over and over. I can not tell you how much you guys blow me away! Your faith, and your strength are one I will forever be thankful to have witnessed. Being a part of your story and journey is more of a blessing to me than you will ever know. I truly pray for you guys every day, and will now be praying for the family that gave the gift of life to so many! How I look forward to truly wrapping my arms around you and holding you tight! BIG HUG! Give that precious girl a kiss for me!

    Love and prayers,
    Lori Dean:)

  25. Hey Sweet Little Family,
    Oh my gosh what a beautiful little chunk she is:) You know Gerber babies are the best, I am thanking God every day for how awesome she is doing, and the awesome parents she has. I also continue to pray for the family that gave so many a new chance at life. Can hardly wait for you to come home. BIG HUG to all three of you!
    Love and prayers,
    Lori Dean:)

  26. Hey Sweet Little Family,
    There really are now words I can give you, but then I’m not supposed to. I am continually blown away by your faith, and thanking God for the words he is giving. I know he is also giving strength and perseverance beyond our understanding, and I praise him for that. I know there are so many of us walking this journey with you, wishing we could bear some of the weight. So, I pray that God will allow my prayers, my strength, and most of all my love for you all, to reach through and truly help hold you steady. BIG HUG!
    Love and prayers,
    Lori Dean:)

  27. Hey Sweet Little Family,
    HAPPY BIRTHDAY SWEET JEREMY! As always holding you guys close to my heart and in my prayers. I wake up every morning thanking God for the day, and praying for your sweet family. Feel my arms around you guys. BIG HUG!
    Love and prayers,
    Lori Dean:)

  28. Hey Sweet Little Family,
    Oh how truly amazing you are. I know when things are so tough that you get tired of hearing that, but I don’t want to stop saying it because it is so true. Isn’t it crazy how many lives your sweet little Ryman has touched in the short amount of time she has been with us. How her Mommy and Daddy have found strength they didn’t know they had and the lives they have touched. I hold you up in love and prayer and will continue to do so. I pray you can feel my arms around you. BIG HUG!

    Love and prayers,
    Lori Dean:)

  29. Hey Sweet Little Family,
    Had to share with you! My Birthday was yesterday! I want you to know that reading the last two days about sweet baby Ry and her getting a liver and doing so well is truly the best gift I could have asked for. I truly celebrate her and both of you! I thank God for all he is doing, and I thank God for ya’ll. Love you bunches! BIG HUG!
    Love and prayers,
    Lori Dean:)

  30. Good Morning Sweet Little Family,
    So thankful to see you in a home. I thank God for those precious people who opened their hearts and home to you. Love the pictures, thanks for sharing! Can hardly wait to meet sweet baby Ryman. Know you are continually lifted up in prayer by so many! BIG HUG!
    Love and prayers,
    Lori Dean:)

  31. Hey Sweet Little Family,
    Steve and I just saw the picture and laughed out loud. She is so beautiful, and that expression is priceless. We will pray, pray, pray for sure for her to eat, eat, eat. BIG HUG!
    Love and prayers,
    Lori Dean:)

  32. Good Morning Sweet Little Family,
    Praying today is a great day and clinic goes well. Seems I wake up every morning and head to the computer to get my “Little Family Update”. Thanking God every day for all the healing. BIG HUG!
    Love and prayers,
    Lori Dean:)

  33. Good Morning Sweet Little Family,
    How can someone so little be so strong! Ryman and her parents are some of the strongest people I know. I look at that precious smile and think about the strength behind it! I look in both yours and Jeremy’s faces and think how strong you both have been! I know you will say it is God, but you have to remember it is really a “team” effort. What a team the “Little’s & God” are. Praying today is a great day all the way around. BIG HUG!
    Love and prayers,
    Lori Dean:)

  34. Hey Sweet Little Family,
    Sure love all the pictures. Can’t wait to get my hands on her and ya’ll too! You are so covered in prayer today, and we are thanking God every day for keeping his hand on her and her awesome parents. BIG HUG!
    Love and prayers,
    Lori Dean:)

  35. Hey Sweet Little Family,
    Love these answered prayers:) it makes my day! Can’t believe how big our sweet Ryman is getting. look so forward to meeting her and holding her! look so forward to hugging you guys too! Will keep you covered as always! BIG HUG!
    Love and prayers,
    Lori Dean:)

  36. Hey Sweet Little Family,
    Woo Hoo! I can’t wait to see you guys. Your coming home! Yay! Covered you in prayer for safe travels. Know you can hardly wait, but take your time, be safe, and enjoy! BIG HUG!(Can’t wait to do it in person)
    Love and prayers,
    Lori Dean:)

  37. Hey Sweet Little Family,
    A new chapter! Thanking God over and over. Love the pictures. Can’t wait to get home and put my arms around all three of you!
    Love and prayers,
    Lori Dean:)

  38. Hello Sweet Little Family,
    Thanking God again for good results! When I look at the pictures of your sweet, beautiful girl, it makes me smile, and be thankful. Will get in touch soon so I can see you guys and meet that precious baby girl.
    Love and prayers,
    Lori Dean:)

  39. Love seeing all these cute photos of Ryman! So glad she is doing well! Hope yall had a Merry Christmas and Happy New Year!!! Cacky from Georgetown

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