Ryman Ali Little
If you haven’t heard Ryman’s story in short –
Ryman Ali Little was born on April 24th. We were preparing to leave the hospital and take Ryman home on April 26th but our nurse had been concerned about Ryman not being as alert and not wanting to eat. The NICU doctor at Baptist Hospital examined her and discovered that her ammonia level was very high, Ryman was then transferred to Vanderbilt Children’s Hospital on her 3rd day of life.
A problem with Ryman’s UREA Cycle was discovered, this disease is a genetic liver disease in which the liver cannot break down protein and the nitrogen accumulates in the form of ammonia in the blood stream. Ammonia then reaches the brain where it can cause irreversible brain damage, coma and/or death. With further testing at Vanderbilt and as a result of this problem Ryman needed a liver transplant. Ryman remained under the care of the doctors and nurses at Vanderbilt Children’s Hospital until she was transferred to Washington DC, Children’s’ National Medical Center on the 12th day of her life. Ryman was under the care of the Genetics team at Children’s until she received a liver transplant on August 30, 2013 at Georgetown University Hospital from her first donor. There was a clot which caused damage to that liver and she received her second liver transplant on September 18, 2013 from another donor.
We, Jeremy and Brandy Little, are so proud to be Ryman’s parents and know that God has a very special plan for her life.
Thank you so much for your continued love, support and prayers for Ryman’s journey.