110 hours

Woke up with a black crows song in my head. I don’t even like the black crows but my good friend Nick Diamond has played this song like 100 times around me. No accident…

Well, well, well
If you need it, God’s got it!
God’s got everythang that you need
If you need it, God’s got it
God’s got everythang that you need
If you need it, God’s got it
He’s got everythang that you need
He’s got every, everything a poor boy needs.

We were moving a little slow this morning. Too many late nights at the hospital are catching up with us. Today we walked in the NICU to find that the night nurse had decorated Ryman’s door. Kinda scary cause you know they plan on her being here for a while but also awesome that they took the time. She started the day off with ammonia level of around 40. She is on full feeds and the plan is to take her off all dopamine and dobutamine before lunch. They even want to back her off all the pain meds some, which will make her a little more aware we are here. The EEG last night is still happening but we are told that it’s almost done and that at some point today they will remove the ventilator. This is so EXCITING!!!!!

Fast forward 4 hours. Off all those meds. We now have the mummy head used for the EEG off also. It was pretty freakin cute. The EEG nurse even after a 15 hour day and getting called back in went the extra mile and made her a little bow for her head. Think it’s that this little nugget is just so dang cute everyone immediately falls in love with her. I’m probably gonna hate this in 16 years. Also.. The ventilator is OUT!!! She’s breathing on her own like a little boss right now!!! So proud of her. Love that she keeps reminding me how strong she is.

Liver transplant update:
Still waiting on the exact diagnosis. Looks like its gonna be Thursday before we get the info. Brandy and myself are still possible donors but there are some catches. Basically we are going to have to get Ryman flown to whatever city we pick for testing before we can be matched. Then we’ll need to go to that same city and be tested ourselves. Also we learn a little more about what problems for Ryman post transplant could happen. It’s very scary and nothing is 100%. Well…. Not statistically speaking. We believe that God has taken care of her this far and he ain’t done. I keep reminding myself of this.

Mark 9

23 “‘If you can’?” said Jesus. “Everything is possible for one who believes.”

24 Immediately the boy’s father exclaimed, “I do believe; help me overcome my unbelief!”

I know that right now Brandy and I could use prayers not for what we believe but for our unbelief.

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12 thoughts on “110 hours

  1. I hope that one of yall are a match and that everything will go ok with yall i love yall and my whole family is praying for yall ill try to come visit yall.

  2. Jeremy and Brandy, I think of the three of you daily. I say a prayer for your beautiful little girl Ryman every morning and every night. You will all get through this! This world needs Ryman Ali Little! She is a beautiful miracle. . . .1 in a million! There are no other options!! Continued prayers, Love and Light!

  3. Praying for you guys constantly. We love you guys and little Ryman. I can only imagine how hard this is. Nicu and a ventilator is hard enough with out all of the additional. I am so glad that I got to hold her in my arms. So grateful for that moment. I wont stop praying until that girl is home and this is all over. Love you guys so much.

  4. what an amazing little girl…thank you for keeping us posted..also but putting all your thoughts on paper (laptop)..helps to put it all in perspective im sure. Ryman sounds like GOD has made his visit to heal her..but i will keep praying and thanking ***KISS*** little Ryman!

  5. Such great news! She is already acting like a big girl doing all that on her own WOW,W2G Ryman and thank you Lord for allowing her to do so! I hope by Saturday I will be able to see her and give her some love. If their is a way that I may can donate please inform me because I would not hesitate one bit to test and donate if I could!!!!! I will continue to pray and update as many people I know on her condition and testify to everyone the healing power that he has already done. May God continue to bless her with strength as well as you all and may he continue to carry you all along. Just like that song..

    I cant even walk without you holding my hand
    The mountains too high
    And the valleys too wide
    Down on my knees
    I learned to stand
    But I cant even walk
    But I cant even walk
    without you holding my hand!!!!!
    Thank you Lord for holding our hands!

  6. LORD PLEASE CONTINUE TO LOVE ON MY FAMILY AND WE ALL THANK YOU IN ADVANCE FOR THE COMPLETE HEALING OF THIS WONDERFUL, TINY ANGEL AND WE ARE CLAIMING A FULL HEALING AND FOR HER TO LIVE A NORMAL AND HEALTHY LIFE FOR THE REST OF HER LIFE,FATHER GOD I PRAY YOU USE THIS TO MAKE EVERYONE STRONGER IN YOUR WORD AND TO USE THIS AS A TESTIMONY TO OTHERS WHOM NEED TO HEAR HER STORY AND LIFT THEIR SPIRIT AS WELL,LORD WE ARE KNOWING YOU WILL USE THIS FAMILY TO REACH OUT TO OTHERS AND REMIND THEM OF HOW IMPORTANT IT IS FOR THEM NOT TO LOOSE TOUCH IN THEIR FAITH AND IN YOU EITHER. FATHER GOD WE JUST LIFT THEM ALL TO YOU AND THIS SITUATION AND WE LOVE YOU VERY MUCH ,YOU ARE OUR ALL IN ALL AND WE PRAY THESE THINGS ALL IN THE NAME OF THE FATHER, THE SON AND THE HOLY SPIRIT ,AMEN… WE ARE ALL SENDING OUR LOVE AND IF EVER YOU ALL NEED A PRAYER OR JUST TO TALK PLEASE CALL OR HAVE AUNT RUBY TO CALL.
    LOVE ,
    GENNYLEE AND FAMILY
    GENNY & PAUL
    CHAS AND FAMILY

  7. That bow! Too sweet. So thankful for good news, a beautiful little trooper of a baby girl, a great medical team, and your hearts for pointing to Jesus through all this. Love you!

  8. Prayers for everything you need to see you through on their way from New Jersey!! Please let us know if we can help in any way–Jeff or Heather can always give you John’s cell. Much love to the three Littles!

  9. I can not express in words the emotions I feel when reading your blogs. This little girl and her amazing story will forever impact my life. As it has reminded me that through Him all things are possible. Thank you for sharing and letting me be a witness to your faith and the work of the Lord!

  10. Praying for y’all.

    am the LORD, who opened a way through the waters, making a dry path through the sea. “But forget all that— it is nothing compared to what I am going to do. For I am about to do something new. See, I have already begun! Do you not see it? I will make a pathway through the wilderness. I will create rivers in the dry wasteland. Isaiah 43

  11. Just read your story, it was passed on to me by a fellow employee whose daughter follows you guys and ask us to keep your precious baby in our prayers. I am so amazed at the advances in medicine since I worked in the hospital setting. I am however, always amazed at the miracle of life and the creator of life. Your faith will carrying you guys through and you will bring that precious little lamb home with you soon. God is still the greatest physician!!!

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