This is Brandy, It is 3:26am and I am up to pump. What a crazy feeling to sit in the nursery and pump without a baby in the house. They are able to mix breast milk in with Ryman’s special formula, this is great since it will help build her immune system. So I am pumping away in hopes that this makes Ryman even stronger than she already is.
I called to check in on her before I started and things are looking good. She hasn’t had anymore spells of her blood pressure bottoming out so they are weaning of the meds for low blood pressure. Her latest ammonia level was in the high 30’s which is great. They are happy with anything under 80. So we are extremely happy about that number. Especially since she is getting large feedings. This means the meds and the balance of formula are working well to eliminate the ammonia.
We are hoping to be off the ventilator at some point today but are in no hurry to rush it. I want her to be well and ready to do all the work on her own and yesterday was such a big day with surgery. She needs to rest up. We are hoping to get to meet with the Liver specialist today to start to explore the possibility of either Jeremy or myself giving Ryman a piece of our liver. We do not know much about the process thus far but every day we learn so much.
Jeremy & I have been getting messages from so many that are praying for our sweet little nugget. We are leaning into God so hard right now and have been able to get through the past few days knowing that he is holding her and has a plan for her. It makes my heart beat faster to think about all those she is already touching. She is only on her 7th day of life and yet has made so many stop and appreciate the little things in life we take for granted on a daily basis.
I’m going to get some more rest but hopefully we are able to update some more progress soon. Love you all so much and are so grateful for all the prayers. We know she/we are not alone in this.
‘Trust in the Lord with all your heart,
and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.’