90 hours in

This is Brandy, It is 3:26am and I am up to pump. What a crazy feeling to sit in the nursery and pump without a baby in the house. They are able to mix breast milk in with Ryman’s special formula, this is great since it will help build her immune system. So I am pumping away in hopes that this makes Ryman even stronger than she already is.
I called to check in on her before I started and things are looking good. She hasn’t had anymore spells of her blood pressure bottoming out so they are weaning of the meds for low blood pressure. Her latest ammonia level was in the high 30’s which is great. They are happy with anything under 80. So we are extremely happy about that number. Especially since she is getting large feedings. This means the meds and the balance of formula are working well to eliminate the ammonia.
We are hoping to be off the ventilator at some point today but are in no hurry to rush it. I want her to be well and ready to do all the work on her own and yesterday was such a big day with surgery. She needs to rest up. We are hoping to get to meet with the Liver specialist today to start to explore the possibility of either Jeremy or myself giving Ryman a piece of our liver. We do not know much about the process thus far but every day we learn so much.
Jeremy & I have been getting messages from so many that are praying for our sweet little nugget. We are leaning into God so hard right now and have been able to get through the past few days knowing that he is holding her and has a plan for her. It makes my heart beat faster to think about all those she is already touching. She is only on her 7th day of life and yet has made so many stop and appreciate the little things in life we take for granted on a daily basis.
I’m going to get some more rest but hopefully we are able to update some more progress soon. Love you all so much and are so grateful for all the prayers. We know she/we are not alone in this.

Proverbs 3:5-6
‘Trust in the Lord with all your heart,
and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.’

14 thoughts on “90 hours in

  1. thank you for taking the time to post an update-praying for Ryman, her medical team and you! so grateful this was discovered before you left and that you’re at a great medical facility. Lifting you up today-strength and wisdom for all of you-love Rick and Kathy Rupp

  2. Brandy and Jeremy…our hearts and prayers are with you. We have an awesomely great Father and He always takes good care of His kids. Ryman is an absolutely beautiful baby girl and Father has awesome plans for her future. You are loved and highly favored!!!

    Leanne and Ray Goff
    Jeremiah 29:11

  3. I am Whitney’s mom and I am so encouraged by little Ryman’s steady progress in the last few hours. I’m praying for you and all those who will give her special care. God bless you with patience and courage!

  4. Brandy, thank you for the updates. We are all praying and trusting God for his continued blessings. Vanderbilt is a wonderful hospital with great doctors. Baby Ryman is in good hands. We love you all and will continue to pray.

  5. Brandy, I am praying for you, Jeremy and that sweet little baby girl!!! So happy to hear she is doing better. I will continue to pray for you all.

  6. Not a minute goes by that I’m not thinking about you guys and that sweet girl. So amazed by how you are trusting God moment by moment (which is my best definition of parenting!) Love you three!

  7. Brandy & Jeremy….. I have prayed every day for your baby girl. She is beautiful. I will continue to pray for you all. Thanks for keeping us updated. Lots of love and prayers sent your way!

  8. So very thankful to hear of Ryman’s progress. You are all in my thoughts and prayers. Ryman is very blessed to have all the love and support. Will be in Nashville in few weeks to see Carey. Hope to be able to see you then and meet Ryman

  9. Good Afternoon to you. I am Brad Heilwagen’s mother and was at Vandy with them this past weekend for Adam’s appendectomy. Little Ryman and both of you have been in my constant prayers since the weekend. Will continue to pray for complete and total recovery for Little Ryman and for peace and patience for you as you travel this journey. You are all in a very good place…in the loving, healing hands of our awesome God.

  10. There you go… being a great mom! πŸ™‚ doing multiple things at one time. You are already a pro at it. That baby girl is soooo blessed to have you and Jeremy for parents. God hand picks parents for little miracles like her… I just know it! Randy, Sullivan Mae and myself love you all so much. Look at the wonderful miracles God has done in the past 90 hours. So very grateful he is hearing all of these prayers. πŸ™‚

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