Today would have been my last day of work if I hadn’t been induced last Tuesday. Ryman wouldn’t even be here yet, crazy to think about.
I’m pumping again, I have to apologize to any friends I have who are moms who breast fed. I would have helped out way more if I’d realized how literally ‘draining’ it is.
Speaking of breast feeding, Ryman started bowlless feedings last night. Which basically means they decided to try to give her more of her formula in less time. We thought they were going to do two hours of formula and one hour off to start. However, they were being a little aggressive and tried to do 1 hour on, 2 hours off. The thing with this is that she is getting way more protein at one time instead of the continues drip which spreads it out. I just called for an update and indeed her ammonia levels are back up to 96. We want to keep it under 70 if we can. So they gave her some extra meds, the ones that go and scavenge the ammonia to get rid of it, and stopped the feeds. We should get another reading at 9 and will reassess and more than likely try the original plan of 2 hours on, 1 hour off. I’m sure the formula will be tweaked some as well.
Today is the day we need to make a decision on which hospital we will do the transplant at. This is an extremely tough thing to do. What if we pick the wrong one? So many concerns. Prayers that we are able to pick a hospital and know that no matter what god has this.
We did get to hold Ryman yesterday but the best part for me was hearing her cry. Never did I think that I would want my baby to cry, but I hadn’t heard it since last Thursday night. It was such a sweet sound. She also opened her eyes for us last night and was so aware. She would look at me and then at Jeremy. I can’t tell you how amazing this was. I really hadn’t seen her look that aware since the day she was born, a very very good sign.
Dr. Morgan, one of our several geneticist, was in the room at one point and Ryman sneezed. I have been scared to death when she had been doing that, what if she is getting sick? But he said that is a very good sign, it takes several parts of your brain to sneeze. Apparently the sneeze is a very complex thing and he said he was optimistic before but now has data to back up his optimism. A great thing to hear your doctor say!
I get stressed and worried about every little thing and Jeremy is having to keep reminding me to stop freaking out. Boy am I lucky to have him. Not only is God taking care of our little girl but he has given Jeremy the strength to guide and truly lead our family. This is a lot to take on yet he has faced everything with out hesitation. He is such an amazing daddy. I knew he was going to be but seeing him with our little nugget makes me fall in love with him even more. He has also been putting up with my crazy moods pretty well. One minute I’m extremely happy at our progress and the next I’m super depressed. What gives hormones!!
Today I pray for strength for us both and for me not to be a hormonal basket case!
We also received a card from a small group at Crosspoint. We are so very grateful and were so sad that we missed you guys when you came to drop it off. We were getting to give Ryman a bath . Well dad did all the work, he was just so good at it ;).
As you give yourself more and more to a life of constant communication with me, you will find that you simply have no time to worry.
(Thanks Marcia, needed this one)