On Ryman’s 12th day of life and our 12th day of parenting we are on the road and Ryman is already off her jet and in DC.
We woke up to news that the meds broke the clot up but that the dialysis only lasted for maybe 1 full cycle. It kept throwing errors because she wouldn’t lay still. They gave her tons of meds to sedate her and she slept for a bit but was wide awake again this morning. Her ammonia level was in the 40’s at one point this morning which they think was due to them pulling out so much blood to get the clot out of the cannula and giving her new blood through infusion. The last number before she left Vanderbilt was 65. We are praying for an easy and safe transport to DC.
Thanks to our friend Jessica Esch for the hotel last night in Knoxville. We got some good sleep and feel rested for the rest of the trip today.
Also thanks to the Oakmans for our goodies to help keep us energized and to everyone who has helped out in making this transition as easy as possible for us. We love you!
We just got a call from insurance that they are going to cover transport. This is amazing since we were told this weekend that they were not going to.
“Fear, uncertainty and discomfort are your compasses toward growth.”