This is from 9 hours ago
Heading back to Nashville for a few days for a few shows. Pretty excited to have work as a distraction. Need a little music time to settle me down. I knew it was gonna be a little difficult to leave but had no clue how much I’d miss my girls. Not even 20 min into my flight and I’m already counting down till I get to kiss em both. Plus how terrible is it that Brandy’s first Mother’s Day I won’t be there. 😦 At least we’ll get to spend our 5th anniversary together later this month.
Doctors feel like we have a pretty good handle on her ammonia level. Started bolus feeds and expect to be giving her all her meds through a bottle this week. That means all but 1 needle will come out. Met with some of the transplant team yesterday and a few more are coming to see her today. They will be doing a ton of blood draws over the next week and will be checking to see how blood vessels and ducts are connected to her current liver. They seem way more interested in using a cadaver liver then a living donor. One doctor even told me I’m to tall to give her part of mine. I have no clue how my height could be a factor. So 12-18 pounds is the next goal. That’s the weight they would like to have her at before the transplant.
Hats off to the nursing staff and doctors at Children’s national hospital for making us feel so informed and answering all of our dumb questions. Brandy promises to keep us all informed while I’m gone.