Ryman isn’t much of a fan of sleeping lots during the day. She was awake and looking around so much that one of the nurses got a mobile for her bed. She seemed to really like it. She is also not a fan of waiting for her bottle to warm up, neither am I. She has some strong little lungs. One of the nurses said that Ryman makes her presence known and she is queen of the hallway. Her ammonia was 50 at 4am, they haven’t tested again since then but she seemed good today. They were able to lower it by changing the amount of protein and the dosage of Buphenyl. This is really good because we wouldn’t need an Ammonul or an IV to bring the level down. Ryman had lots of attitude and ate so much today. She had around 115 cc’s at two feedings today. Trying to hurry up and gain that weight to get her new liver!
I pick Jeremy up from the airport at 10:30am, I can not wait. We miss him so much but we are glad he is still getting to work. It will be really nice when we can go back to Nashville with him. There are still some talks of it but I’m almost afraid to mention it because every time we do her ammonia level spikes. Taking her home is still a very scary thought but as each day goes by I start to have a little more faith that we will know if something is wrong.
Prayers for Jeremy and I, that we would be able to trust ourselves and our instincts to know if her levels are up.
We love you all!
Remember that I am sovereign over your circumstances, and humble yourself under My mighty hand. Rejoice in what I am doing in your life, even though it is beyond your understanding.