Day 90

Ryman’s numbers were great today. At midnight it was 85, 6am was 56 and 4pm was 68. That was with a protein increase. The 10pm draw was 66! We found out today that if there is a liver match for Ryman it is hers. There are no 1A or other 1B’s ahead of her in this region!! Such great news. Now its just waiting for the call, which will be so exciting yet so bitter sweet. For us to get the call someone else will have left this earth. Such a hard thing to process. We are getting the final lab that the transplant team needs in the morning. A friend of Jeremy’s sent us a very large goody bag for the hospital. She spent lots if time in the hospital with a sibling so she loaded us up with so much stuff. All of the necessities that you need for a long hospital stay including the hard copy of Jesus Calling. I thought to myself, I wonder what April 26th said, since that was the day we found out that something was not right about Ryman’s behavior. This is what it read: ‘Welcome problems as perspective-lifters. My children tend to sleepwalk through their days until they bump into an obstacle that stymies them. If you encounter a problem with no immediate solution, your response to that situation will take you either up or down. You can lash out at the difficulty, resenting it and feeling sorry for yourself. This will take you down into a pit of self-pity. Alternatively, the problem can be a ladder, enabling you to climb up and see your life from My perspective. Viewed from above, the obstacle that frustrated you is only a light and momentary trouble. Once your perspective has been heightened, you can look away from the problem altogether. Turn toward Me, and see the Light of My Presence shining upon you.’

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7 thoughts on “Day 90

  1. This is great news and I understand the mixed emotions about the fate of the Donor! Just to try to shed a little positive light on your emotions regarding the Donor, I know in my heart that if my day had come to be with my Lord and I was fortunate enough to provide for a child a much needed organ, especially a child who is such a fighter for life like Ryman, I would feel very blessed !
    Praying for the day when all this sickness is past and your lives can be lived to the fullest! Love You!

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