Day 96

Just waiting here. Ammonia was 44 on Saturday morning so we are giving her a day off and not testing until 4am in the morning.
Jeremy’s mom and dad are here this weekend so I got to go sleep in a bed some more. The Ronald McDonald house is close to the hospital and it is so nice. If you have ever thought about donating to a charity, it really is a great one. We have met some amazing people with amazing stories as well.
Corey and Julie came to babysit yesterday while we went for lunch and some shopping. We got a bumbo seat to see if she would like to try to sit up some. She lays lots and I know that can not be great for the shape of her head and her neck strength. We tried it for a second and she looked so cute, it was pretty difficult with all the lines though. Prayers for the family in the room next to us. Their child is on end of life care and wasn’t suppose to make it through the night but is still with them today. i can’t imagine that type of waiting right now. It really makes you cherish every single day we have.
Jeremy comes back tomorrow and we can’t wait.

Romans 5:3-4
Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope.
Ephesians 4:2
Be completely humble and gentle; be patient, bearing with one another in love.
James 1:12
Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him.









5 thoughts on “Day 96

  1. So glad you got some rest! Baby girl looks amazing – love her in the bumbo! Praying for you all and for the family next door. Take care of yourself. Much love.

  2. You’re going to make it little Ryman, precious child of GOD…you’re a strong little girl with parents whose faith is grounded in hope.

  3. So cute in that bumbo! L had a bad flat head so ask if they can get PT to come work with her now. They can give suggestions for more upright time.

  4. Oh goodness, that sweet baby girl is full of character! The pictures are just so fun… what a great smile!!! Thinking of you all, and praying always.

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