Day 121 update

We are in PICU. After 2 X-Rays the central line was good to use so Ammonul was started at around 7. She just ate 85ml of formula (only .7 g/kg) of protein. She is sleeping in my arms. Prayers that tonight’s ammonia draw is low. Big thanks to the genetics team and all the nurses for making us feel so great. Several nurses from the 7th floor came down to PICU to say hi and check in after their shift. Ryman is so loved and so cared for. Makes my heart happy. Ill update as soon as we know her next number. Love you all!

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2 thoughts on “Day 121 update

  1. So sorry you all only got two days out of the hospital. But glad you have such great care for Ryman. Praying her number will come back down and for strength for the two of you.

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