138 update

Just got word that the Liver at Children’s is to big for Ryman. Very hard pill to swallow. She’s currently doing amazing and we expect more offers really soon.

Trying to focus on the positive. Another family with a urea cycle disorder just got the best news ever. Praying their surgery goes well.

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6 thoughts on “138 update

  1. Brandy, this is your mom’s nurse Deborah. I have put the word out and have a lot of people praying for you, Jeremy and most of all for little Ryman. Your faith in God thru all of this is so inspiring. Just rest in his arm.

  2. Praying for you and your sweet baby. I am friends with Brittany Steiger and have been reading your updates as she posts on facebook. You have been on my heart and in my prayers.

    So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10

  3. Prayers for the family who will receive this gift! Continue trusting that God is in charge and has a plan for Ryman. Prayers and love sent your way….

  4. Y’all are so gracious because a) you share this journey with us, b) you pray for the other families involved, c) you aren’t afraid to how your fear as well as your strength.
    Thanks for the inspiration & blessing you and Ryman are to so many. We will all keep saying our best prayers for you and your precious little girl.

  5. Love you. Many of my friends are praying too. Soon I just know she will be talking, smiling, and watching her iPad cartoons, listening to soft music. And I want to hold her too!

  6. I’m sending prayers for Ryman for her healing, prayers for a new liver, prayers for your comfort as her mom and dad. God bless you all.

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