Day 170 – Numbers

Today will be Jeremy’s fourth trip to DC this week. On Tuesday he had to take a sample of Ryman’s stool to Georgetown to test for infection or viruses. Yesterday we had labs and her numbers had elevated more so we upped her Prograf and steroids. Talk about Roid Rage, this girl was evil last night. If we were at Georgetown yesterday I would have thought the exorcist demon had found a new host in our little girl. She was so unhappy, tired but fighting sleep so hard. We are headed back in to check labs again today. If her numbers are still elevated she will be admitted to start the big dog IV steroids. One of the stool test came back positive for an infection yesterday so the team is starting her on antibiotics today. We should get the viral test back today. Praying that the numbers are lower today.
After talks with the team at Children’s, even Albert said that he wouldn’t be able to get blood from Rye for very much longer. Her veins are in bad shape from all the surgeries and lines she has had. Plus they are deep and they roll. So we are pretty sure she will be getting a PICC line or a Broviac on Monday. This is not our favorite thing but it will be nice to go to labs and not have to hold get while she gets stuck. It will be much easier and I am sure we will quickly adjust to having it. I opened up my Jesus Calling App (seriously can’t thank Marcia Ramirez enough for this gift) and was reminded that living for today and not trying to take this on alone is so important.
Jesus Calling:
Trust Me enough to let things happen without striving to predict or control them. Relax, and refresh yourself in the Light of My everlasting Love. My Love-Light never dims, yet you are often unaware of My radiant Presence. When you project yourself into the future, rehearsing what you will do or say, you are seeking to be self-sufficient: to be adequate without My help. This is a subtle sin—so common that it usually slips by unnoticed.

The alternative is to live fully in the present, depending on Me each moment. Rather than fearing your inadequacy, rejoice in My abundant supply. Train your mind to seek My help continually, even when you feel competent to handle something by yourself. Don’t divide your life into things you can do by yourself and things that require My help. Instead, learn to rely on Me in every situation. This discipline will enable you to enjoy life more and to face each day confidently.

Love you guys and are so grateful that each day we have so many people doing just this for us and Ryman.

Also, big news! We started cereal and Rye has not been a fan but we are so blessed to be able to do this without any worries of her getting too much protein and having high ammonia levels! Amazing!

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3 thoughts on “Day 170 – Numbers

  1. Thanks be to God who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us…Brandy and Jeremy, your faith is an example to all of us. Stay strong little girl Ryman!!! hugs and prayers surround you all

  2. oh you guys,

    Just getting caught up here. What a heart rending post. You know, in all the miracle working of our Heavenly Father, and through our Savior Jesus Christ, we know that miracles are transferred by faith, and through LOVE. I see such Love in this family of three and support group of many. While Rye’s body goes through so much to sustain a normal holding ground, the Love that abounds around her is Supernatural, a gift given from ABOVE to sustain her and the both of you through this situation. Believe that HE is around you and carrying you. Just to watch your precious precious endure this to have her normal daily routine is grueling. Its grueling for me to read and experience through the words of LOVE. I loved the WORD Spoken in this update. So uplifting for me personally and calming that those are the WORDS of MIRACLE LOVE and FAITH to catch on to and repeat back to the Father for Rye’s routine day. Loved all the pics! A book that I read to my babies named Tayla and Clare was Dr Seuss, GO DOG GO. They giggled and cooed over that book for years, and then read it back to me and their Dad word for word. It has become such an endearing part of my past with them that I bought multiple copies for my grandbabies to be. Your LOVE for this baby girl is perfect, which drives this whole situation on to the next check up and the next step. We cherish how you have both rendered yourselves and the most precious thing on this earth to you to our Father. He will never fail you or forsake you. We can personally attest to His never failing presence in our lives and through the unsure steps that we have taken in life. Ours did not involve one of our babies, but we learned to walk hand in hand with the Father that you have so trusted with your lives. He is Worthy! He is Proven! Trust HIM, We know you do, and you inspire us.
    Much LOVE

    RB and Tila Dunn

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