Day 199

We are home! Ryman got discharged late this evening. Last night we found out that they had ordered a CT scan to rule out PTLD. Post-transplant lymphoproliferative disorder, that’s a mouth full. This disorder is a low risk side effect of immunosuppression but very serious and can lead to lymphoma. We do not believe they thought Ryman had PTLD but that they just wanted to cover all their bases and know 100% that it could be taken off the table.
After a long day we finally were told that the scan was negative and we could go home. The biopsy results will actually not be back until Monday. So we left the hospital with no more information than we went into it with. Although we so know that its not PTLD which is nice but I would have never thought that to begin with. We have some ideas as to what we think it could be so we will be implementing mom and dad protocol until we hear back from the doctor on Monday. Thanks Aunt Sara and Uncle Robert for hanging out today and making our baby girl giggle and a big thanks to Aunt Carrie for hanging with us during discharge and seeing us off and Aunt Sarah for bringing me lunch and keeping us company. We are so blessed to have amazing family and friends. Ryman is in great spirits and sleeping soundly in her crib.
Thank you for prayers and love while Ryman was in the hospital again.



3 thoughts on “Day 199

  1. So happy for Ryman’s good results….so far, and expect them all to be good in the end….She just had a bump in the road!! She is a beautiful baby girl and I know you all love her with all your heart. We will keep praying for her.

  2. I don’t know how it is possible, but she just keeps getting cuter and cuter. I bet Aunt Sara enjoyed spoiling her, so happy she was able to visit with you guys. We’ll keep praying for Ryman to make wonderful strides and pray that your Little family can live an uneventful nothing out of the ordinary life kind of life, lol. Love you guys!

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