Day 245 – Merry Christmas

We had the best Christmas present this year, Ryman was home with us! When we were waiting for transplant we were not sure we would be home with her for Christmas. We feel beyond blessed for this, I never want to take for granted how lucky we are to be here with her and not in the hospital or not to have her at all. We have received many cards and gifts and continued prayers. We feel them every day. Yesterday Ryman turned 8 months old, the 18th was three months since the second transplant and everyday we still feel the prayers for her and for us. Thank you to everyone, we hope your Christmas was just as blessed. So much love! -The Little’s

Merry Christmas!

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Day 236

Ryman has an appointment in the morning do prayers that they can get blood on the first stick. I know ill actually miss the picc line when we have to stick her but she is loving bath time. Jeremy flew to NY tonight and will be playing on The View tomorrow with Danielle Bradbery so if your able to catch it I think he should be playing around 10:40 CST. I think Ryman will be excited to see her daddy on TV.
She got lots of love from nanny and poppy and aunt coco this weekend and now aunt Sara and uncle Robert are here spoiling her. So I don’t have to bare the stick alone tomorrow. Wish us luck, if labs are good tomorrow we should be able to start going every other week!

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Day 234

This was such a good week for Ryman. She has been so much happier since starting the Zantac back and she is growing so fast. She rolled over on her own for the first time on Thursday. I got so excited I think I scared her. She also decided to eat a whole jar of carrots. Since it was a day of first I decided to try to give her a puff, if your on Facebook you have probably seen the epic response to that puff. She was not a fan. On Thursday her picc line was also removed. Labs have been great so we go back next week and then we start every other week. Just feeling so blessed that she has been doing so well and getting so excited for her first Christmas. We are headed to Chattanooga to drop Ryman off with Jeremy’s parents. We are on our was to Chattanooga and then off to Atlanta for the night. Very excited for a getaway night with Jeremy.

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Day 224

I think I spoke too soon on Thanksgiving about being home and Ryman almost sent us to the ER.
She threw up on Thanksgiving night and then twice the following day. We ended up being able to get into the pediatricians office instead of having to go to the ER.
We are pretty sure that she was just having reflux due to stopping the Zantac the week before.
Which may explain some of the fussiness. She is also still teething, or at least we are pretty sure she is.
It is so hard to tell but after feeling of her gums every day for the last two weeks I am almost definite that something is going on because they feel different.
She has been back on the Zantac (a double dose actually) since Friday and seems to be doing much better.
Ryman’s labs were great this week. Her prograf level was higher than what they would like so we lowered the does and are going to get it rechecked next week.
We made the decision to keep the picc line until next week so she doesn’t have to get stuck for a blood draw next week.
If everything is good next week she should be able to start only getting blood draws every other week. So exciting!

Day 225

I think I spoke too soon on Thanksgiving about being home and Ryman almost sent us to the ER.
She threw up on Thanksgiving night and then twice the following day. We ended up being able to get into the pediatricians office instead of having to go to the ER.
We are pretty sure that she was just having reflux due to stopping the Zantac the week before.
Which may explain some of the fussiness. She is also still teething, or at least we are pretty sure she is.
It is so hard to tell but after feeling of her gums every day for the last two weeks I am almost definite that something is going on because they feel different.
She has been back on the Zantac (a double dose actually) since Friday and seems to be doing much better.
Ryman’s labs were great this week. Her prograf level was higher than what they would like so we lowered the does and are going to get it rechecked next week.
We made the decision to keep the picc line until next week so she doesn’t have to get stuck for a blood draw next week.
If everything is good next week she should be able to start only getting blood draws every other week. Which would be amazing!
We have slowly started to take Rye out more and started introducing her to other kiddos. She is very curious of these things that are more her size. We can’t wait until we can be out and about and not have to guard off old ladies who want to squeeze her cheeks.
So Thanksgiving was definitely a day of events but we were able to go to bed saying, let’s just see how she is tomorrow. No sense of urgency, no worries to big not to go to sleep and no worries of climbing ammonia levels. Prior to transplant I’m pretty sure we would have spent that night in the ER. God is so good!
God is so good.
She put herself to sleep jumping!

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Dad and a Rye:

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Ryman & Friends (missing a few so send them our way if you have pics :)):

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