Well…… Like we expected we are in liver rejection.  Starting IV steroids in the next few minutes.  They believe we caught this very early and that we should have a handle on it in the next 3 days.  This is all subject to change if Rye’s system plays hard to get.   We appreciate all y’alls calls and text and willingness to help.  Brandy’s sister and my sister are here helping tonight.  We’ll keep y’all posted with updates.  





Liver Biopsy – update

Ryman is now in a room. Everything went great. They were able to place a picc line too. She is pretty sleepy and grumpy from the anesthesia. She is able to have clear liquids and hoping she can eat soon. Still no word on the preliminary results of the biopsy but should hear something within a couple hours. She is watching bubble guppies and I’m pretty sure she thinks they are actually here.


463 days biopsy time

First off it’s really weird to back in a hospital.  Nice reminder how lucky we have been during the past 10 months.  Rye has been a champ and we have been super blessed with very little to no problems.  We even started to treat her like a normal kid.  This is just a reminder to us that she was a very sick little girl not that long ago.    

The last 2 days we have had some bad lab numbers.   Due to this we are getting admitted to Vanderbilt to do a liver biopsy.  The team believes that we are in acute liver rejections.  Yes this sounds very very scary but we are told that it’s fairly common within first year of transplant.  If it is rejection we will spend the next 5-8 days admitted so we can get IV steroids.  We hope to have a 100% diagnosis by around 5 today.  We are expecting lots of labs over the next few weeks so we are having a Picc line put back in.  BOOOOOOOOOOO.  This sucks but we know it’s best for getting usable samples and keeping Rye safe.  


We’ll keep y’all posted.