Amazing community.

Ryman’s numbers have been improving. Her Alkaline Phosphate is starting to go down. Her GGT is still going up so they decided to repeat the ultrasound image study just to be sure there were not any bile duct obstructions that were missed with the first study. We got results back yesterday and the bile ducts look great so we can officially rule that out. They are lowering her steroids every day -and we get to switch to oral ones today. We are having some epic meltdowns. She didn’t go to sleep last night until after 11pm a could nights and 10pm last night. She stood in front of her room door screaming at the top of her lungs, throwing herself down in the floor. Super dramatic! They have started her on another immune suppressant called Cellcept just to be cautious and incase she isn’t absorbing the prograf correctly. She is still having virus symptoms so yesterday the infectious disease doctor came by and they ordered several more stool cultures and test to check for some other not so common viruses. I am happy about that but until those results come back she is on isolation which means no leaving her room. Not an easy job keeping her occupied in this room. Not sure what the plan is as far as going home we were originally hoping today we would set to and then do labs twice a week to keep an eye on her numbers. With the new stool studies I am not sure if they will want to keep her a couple more days.
We are so thankful for all the friends and family who have helped so much this week. From food, flowers, watching Ryman so Jeremy and I could grab dinner together and coming to just hang out with her and us. We are so truly blessed and have the most amazing people in our lives. For your prayers we are forever grateful.
“Therefore everyone who hears these words of mine and puts them into practice is like a wise man who built his house on the rock. The rain came down, the streams rose, and the winds blew and beat against that house; yet it did not fall, because it had its foundation on the rock.”
—Matthew 7:24–25

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One thought on “Amazing community.

  1. We will continue to pray for u baby doll, God is the great Physician, the great Miracle Worker, the Great I Am, he can heal ur baby, he gives the dr and nurses the wisdom and knowledge and guides their hands just continue to have faith, God Bless You All! He will give you all strength

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