That dang Alkaline Phosphate is finally coming down. Monday was down to 2800 from >4555, yesterday was 2100. Slowly but surely. AST and ALT were up a bit on Monday but are coming down again. I think even our doctors had a sigh of relief when the Alkaline Phosphate came down Monday. They were in the process of referring us to the hematology team to make sure we weren’t dealing with something more than a virus and infection.
We have 6 more days of IV antibiotics so my prayers are that her levels are normal enough by then to go to at least weekly labs since the picc has to go. However I did notice tonight after flushing her line the catheter site looks a little red. So I emailed a picture and will hear from them tomorrow on whether I need to take her in to have it checked. Better to be super cautious. She doesn’t have a fever so I’m thinking it may be okay. It’s been a long couple weeks and the exhaustion has taken a toll on me. I typed most of this last night but fell asleep before I hit publish :),
Prayers for continued healing and for no new line infections.
Ryman is going to a new nanny. She has another play mate there named Riley. Ryman is teaching her new trick.