It is really hard to even wrap my mind around where we were this time last year. Ryman was Day 1 Post Transplant! We met Katie for the first time on this day last year also. She has been such an amazing support through all of this. Her daughter also has CPS1 and was transplanted at Georgetown at almost the same age as Ryman was. She is my go to for crazy transplant questions and even random, ‘so did L go through a stage where she poked at her belly button and pushed on her scar lots’, questions. Today my worries were if Ryman needed to poop and are her teeth getting stained from the iron supplements… man we have come a long way in a year. I watched Ryman sing and dance today and thought of how amazing our God is that she is with us. When I think of this I will be honest, it’s hard to think of the children who left this world and gave Ryman the chance to live. It’s hard not to ask, why? Yesterday and today are such emotionally exhausting days. They are days of joy. Yesterday was the anniversary of the ‘call’ and today was the anniversary of when she actually got the new liver. They are days full of thankfulness and happiness that the first year is behind us and Ryman is still here with us. They are days of feeling heavy hearted for the family who are having the first anniversary of their child’s death and the thought that we will repeat these emotions on Sept 18 when it’s the anniversary of Ryman’s second transplant. It is so strange to be pulled in such opposite directions of emotion. Happiness and sorrow. I hope that the families can find even an ounce of happiness in the thought that their child’s life ended with more meaning than most of us will leave this earth with. If you aren’t an organ donor please consider it. Each day, an average of 79 people receive organ transplants. However, an average of 18 people die each day waiting for transplants that can’t take place because of the shortage of donated organs. People of every age give and receive organ donations. In 2013, 28,953 people received organ transplants. Below is the number of recipients by age group followed by the number who received organs from deceased and living donors:
o 1 Year Old: 260 (241 deceased, 19 living donors)
o 1 – 5 Years: 545 (437 deceased, 108 living donors)
o 6 – 10 Years: 292 (228 deceased, 64 living donors)
o 11 – 17 Years: 721 (591 deceased, 130 living donors)
o 18 – 34 Years: 3,081 (1,983 deceased, 1,098 living donors)
o 35 – 49 Years: 6,310 (4,699 deceased, 1.611 living donors)
o 50 – 64 Years: 12,674 (10,516 deceased, 2,158 living donors)
o 65+ Years: 5,070 (4,271 deceased, 799 living donors)
I currently know many families whose children are waiting on transplants Even a little boy whose mom is on the hunt for a living kidney donor since he will wait forever on the list with the possibility of never getting one in time. If you have any questions feel free to ask, there are many misconceptions about organ donation. It’s an amazing and beautiful thing these two children have done for our Ryman. I want her to never forget the lives that she carries with her daily.
So much love, B
Brandy Little, PG, CFM, GISP
AMEC Environment & Infrastructure
Office: (615) 333-0630 ext. 7072
Cell : (615) 974-7077
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